No playhouse for Maddy
We recently received a wish for our granddaughter that we are raising. She has OI, a brittle bone disease that is very painful. She has had 30+ fractures and 10 surgeries. She is a little person. I am raising two others with same disease. After having Disney Trip denied because I had to have emergency surgery, and Make a wish was anxious to get her wish done, they said she could have her next wish which was handicapped playground equipment. After waiting weeks, we were told no, she might fall. They said they would grant her third choice, a playhouse. They said it would be 4x8. We said no thank you. Finally they said 10x16, cream color, with a porch. Make-a-wish policy is that no cost is incured by the parents. At our expense we had to take down our fence, spend over 100 on preparing the site, after delivery put the fence back up. I was crushed when it was delivered.
Maddy got a tool shed. The door is made of vinyl siding, the windows are under the roof she can't open them or see out of them. It is not accessible, so in her wheelchair she cannot get in, neither can my other two kids in their wheelchairs. It is just rough splintered 2x4's
and we have found 5 large screws sticking out.
It has tractor doors at one end, but the latch is 6 ft. up and I can barely reach it. The steps in are lined with the steel they make truck tool boxes out of. The kids are not allowed in, even if they could get in with their wheelchairs. It is too dangerous. Our hope is that in the next few months we can afford to have a construction company rebuild it.
I wrote Make-a-wish headquarters, their response was we are not allowed to improve the playhouses.
But on their own website, they have pictures of beautiful playhouses. One has pink walls inside with a mock fireplace, and furniture..One is made to look like a bus, but has electricity, an arcade, TV, DVD player, fully furnished.
They told us that we were to throw a party to celebrate the playhouse, but that they would only provide one food, so it could either be cake or pizza but not both. They sent one volunteer to help with his son, we had to provide tools, $20 in batteries, for a kitchen set for toddlers that she can't reach. I provided everything but the pizza. We ended up calling everyone and cancelling except for a few that we couldn't get ahold of. We were embarrasssed to have a party for a tool shed that the kids can't go in.
Maddy is going to be 9 in two weeks, and last Wednesday had another extensive surgery..
She is heartbroken over the playhouse and now doesn't want to even go in to the backyard at all.
Shame on Make-a-wish for hurting a child that has gone through hell in her young life and taking away something that could have made her smile. I found a website that evaluates wish foundations, this one has make-a-wish with a 45% success rate....