PHOENIX, ARIZONA -- I've had a kidney transplant in 2004 and that experience was wonderful from the surgeons to the CNA's. In 2015 my kidney doctor, who worked outside of Mayo but had privileges there, said he thought it was time to go back to Mayo and get started with the testing for a second kidney transplant because my creatinine was going up. So I did and by November 2015 I was on the list. 9-10 months later I had a bladder infection (usual for me), so I told the transplant team as I was supposed to do, and I stayed on the list but was considered inactive. Being inactive means you don't lose your place on the list but you also can't accept a kidney because I had an infection.
Well I got over my infection and I haven't been active since. Once a year you have to go through testing to be sure you still qualify to receive a transplant. I had no problem with that and I did it. So when I met with the transplant surgeon I thought he was going to do what a surgeon is supposed to do and that is examining me and make sure I was fit for surgery. I was so wrong. This surgeon came in there like I was a criminal and how dare I require a transplant. He said I hadn't done what I was told to do and I was staring at him like **, because I hadn't been told I was supposed to do something else.
I was later sent a letter saying I had 30 days to do everything I was supposed to do or I would be removed from the list. So I found out what I was supposed to do and made all the appointments and followed through with them. There were like 2 appointments I was a little late for because I live 40 miles from the clinic and I had to rely on friends for the trip because my mom was busy taking care of my nana had Alzheimer's disease, and my dad has Parkinson's disease. The reason I didn't drive was because I was so exhausted after a full day of appointments.
I made sure I left when I needed to so I wouldn't be late, but sometimes there were accidents and it made me late but I did all I could to not be late and I would call and let them know what was going on. At times I had to call the same day and tell them to reschedule my appointments because I hadn't slept at all the night before and those appointments I had to reschedule were usually a day after I had all day testing. I have other health issues and those had to be taken care of so I did that and I came up with a caregiver plan that they approved of so I assumed I would be active on the list, but no. Of course not!
I've had to see this ** of a surgeon 3 times and he always finds a “reason” to not allow me to be active on the list. At one of my appointments I had a family friend who has known me since I was 6 years old and she knows how sick I've been all my life, I had a birth defect, and this surgeon was about to tell me I was lazy, but just before he said it my friend put her hand up and told him “Don't go there.” She told him the last thing I was, was lazy, I've been so sick for so long and my body has been through so much so I am exhausted all the time. He shut up after that but I've been paying for it since.
I got that letter I mentioned earlier 3 times and one of the requirements was to see hematology so I called and tried to make an appointment and I was told that there were no orders and they couldn't schedule an appointment without orders. So I called the transplant team and told them I had done all I told to do but I couldn't see a liver doctor because there were no orders and they said they would check into it and call me later and I never heard from them again until I got my 3 letter so I once again I did all they asked me to do. In November 2017 I contacted MRSA and was really sick.
I was in the hospital for a week and went home with IV antibiotics for another 8 weeks and I was on ** which one of the most toxic medications you can take and it always left me so wiped out and sick to my stomach. My last day was January 6, 2018 and I had appointments on Monday the 8th of January and I had to be there at 7:30 am, I was there at 7:00 am and at 10:30 am I saw the surgeon and again he started with my being late again and this was the 3rd time he had to talk to me about being late and I told him I was there early and he looked at his watch and said 10:30 is not early and I said I was here at 7:00 am.
He didn't even acknowledge what I had said and when I asked him when I was late he wouldn't respond. He asked me why I hadn't worked in the 14 years since my first transplant and I said I tried and I even enrolled in an MA class but I couldn't finish my schooling or my work because I would get sick that required me to be hospitalized, and one time for 14 days, and 5 years after my transplant I was diagnosed with type 2 diabetes and I was told that happens in about 50% of transplant patients. By the time he started asking me why I couldn't work I was so scared of him and all I could think of the diabetes.
I couldn't think so I wasn't able to tell him that I had 8 surgeries, many procedures and more kidney and bladder infections than I could count. He was almost yelling and telling me that there was no reason I couldn't work! When I was done with that appointment I finished the rest of my appointments and called the taxi to take me home and I literally shook for 2 days straight and cried for a couple weeks. I'm am very afraid of this surgeon, not like he'll hurt me physically, but I'm afraid to even see him much less have to see him again and he wants to see me again in April with my mom.
He asked me, “Does your mom still get your medication for you,” and I said, “No she hasn't done in over 20 years.” Then he said that when someone from Mayo would call, my mom was saying I didn't feel good and couldn't come to the phone and he asked me if my mom would speak for me and just say I was too sick to come to the phone and I told him, “No not in 21 years.” When I was 18, I told him that my mom always brings the phone to me. He said, “Well I want to see her when you come in April.” He is now adamantly insisting that I have a Neuro-Psychiatric test. I don't know what kinda test that is but I know it's a four-hour test.
After my last appointment with the surgeon I no longer trust anyone at Mayo Clinic, I am truly scared of that surgeon and when I go for other appointments I am afraid to go because of my experience with that surgeon. I am currently looking for different hospital that offers Kidney Transplants!
This surgeon knows that my life is in his hands and it's so scary to think that no matter what I do it will never be enough and I feel that ultimately I will die because being on dialysis is very taxing on my body and try to find access in either of my arms is next to impossible, I've had the best vascular surgeon put access in my left arm. He tried to use the fistula that I already had from the first time I was on dialysis and he couldn't so he put something called a hero graft in my arm and it failed to work so it hard so it was removed. So the only access that is left is a tunneled catheter which is a big risk for infection especially now that I had MRSA.
It's sad to think that people who truly care about the patients are getting a bad reputation simply for working at a hospital that has doctors with major egos who think they have nothing to learn and the patient can't possibly know anything about themselves. If I could give Mayo a negative rating - 0 I would but unfortunately I can't so I am rating a 1.
ROCHESTER, MINNESOTA -- I was a patient at the Mayo Clinic 'World Headquarters' in Rochester MN for nearly three years, and have NOTHING to show for it but bad memories and solid regrets of having wasted so much time with them. First and foremost, Mayo Clinic is a "Teaching Hospital". Thus, expecting quality health care from them is a bit like expecting the students at a Beauty College to get your hairstyle done correctly--your expectations are too high for the given circumstances. Moreover, if not for the mountains of private-wealth cash donations that the Mayo collects each year, they would have folded decades ago.
Theirs is NOT a profitable business model and never has been. Mayo publicly complains about 'the high cost of health care', while consistently billing at dollar amounts four or five times higher than average. Not unlike the kid who mows your grass sending you a bill for ten thousand dollars, and then writing off a 'loss' of nine thousand nine hundred and ninety dollars after you pay him his ten dollars.
While I did find several well-intentioned doctors at Mayo, they were few and far between. Most were poorly-behaved, exceedingly arrogant, and clearly lacking in the basic fundamentals of being an actual Health Care Provider. Worse yet was the average Receptionist worker who behaved like a person who couldn't get hired at a Walmart to save their life. With my state-sponsored Health Insurance policy, I was often dismissed as someone who was merely 'imagining' my health problems. After all, when the 'teams of specialists' at Mayo Clinic can neither diagnose or treat your conditions, where on earth would they send you? Nowhere.
When they couldn't help me, they decided I didn't need help. My endocrinologist once failed to schedule my blood draw for new lab work, and then later wrote me a letter falsely accusing me of trying to Dodge my lab work. A doctor in Sports Medicine arrived more than 45 minutes late to my one hour appointment, and later wrote falsely in my official Medical Record that - I - was the one who was 45 minutes late!
My Physical Therapist once sat me down to show me some Optical Illusion photo of an apple sitting on top of a Chess Board--while trying to convince me that the pain from my fusing foot-joint and Bone Marrow Edema was somehow only 'imagined pain'. Yeah, I guess imagining that same pain in my sleep is what caused me to grind my teeth while I slept. Throughout my time at the Mayo Clinic, I was covered by a "Zero Co-Pay" Health Insurance policy. And yet, to this day, I am still receiving bogus bills from the Mayo Clinic, claiming that I owe them money.
My insurance company assures me that I owe them NOTHING, and that it is in fact illegal for the Mayo to be sending me the bills. Now, did you know that the Mayo Clinic has conned the government of the State of Minnesota into agreeing to pay roughly half a billion in taxpayer dollars in support of the Mayo's private planned expansion across the City of Rochester MN, over the course of roughly 25 years? Mayo's ridiculous 'Destination Medical Center' plan hinges entirely upon the fanciful notion of 'build it and they will come'.
Mayo plans to build, at your expense, more hotels, apartments, and restaurants--despite those which currently exist in Rochester and barely have enough revenue to stay in business as it is. That way, more people will move to Rochester--the globally-insignificant flyover suburb of outer Des Moines that it is--to live and work, and, uh, spend money! And that way, the government of Minnesota will one day be glad it invested so heavily in what has always been a failing private business. Or?
Or, by the time Minnesota realizes it's been had by the Mayo, some twenty years from now, the Mayo will have been taken over by (er, sold to) some Canadian, er British Health Care Conglomerate which will NOT be held responsible for the pipe dreams of the Mayo's previous owners--Mayo family heirs who've long since disappeared to their own private luxurious islands where they can burn through their fortunes of pilfery in criminal secrecy.
Fellow seekers of quality health care, I offer you this: IGNORE those provider groups who advertise how wonderful they are and how they care about YOU--because they don't care about you. Ignore those who still pay to advertise in the actual paper 'Phone Book', as their health care practices are even more behind the times than are their advertising standards. Find yourself a provider with an intelligent, modernized website, whose Appointment Schedulers are kind and sparkly with you over the phone, and who offers you free Keurig coffee in their waiting room--those are the Doctors who DO care about you.
ROCHESTER, MINNESOTA, MINNESOTA -- I went to the Mayo Clinic for eye muscle surgery as a result of Graves' eye disease. A doctor ** was the one who performed the surgery. This guy acted like a little clown. He was always joking around and slapping me on the back telling me he would take care of me. Well, he didn't take care of me. I was left blind in my left eye as a result of his botched surgery. I also lost a bottom tooth due to the way they put the breathing tube down my throat during surgery. I complained about my experience on the Mayo Clinic website which is a complete joke. It is designed to filter out undesirable patients and drop them immediately.
When you file a complaint at the Mayo Clinic on their website you will receive a call back from a woman who is trained to sound empathetic. Of course, when I stated my complaint, I was told that Dr. ** was outstanding and one of the best eye surgeons around. I later found out that he isn't - I checked out his credentials. There was nothing outstanding about his training nor is there anything outstanding that he's done in his practice. After I voiced my complaint to the woman over the phone, and I was told that she would reach out to Dr. ** and I was told how much they care about my eye and that she would see what could be done.
I never heard from her again. Instead, I received a letter stating that there would be no more appointments available for me. In other words, they dumped me and abandoned me as a patient. I was left blind in my left eye and with impaired vision in my right eye. I live in northern Minnesota 250 miles away from the Mayo Clinic - there is no one in my area that can perform this kind of surgery. I know from my research that the Mayo Clinic has done this to many many other people - it is a common practice for them.
They should be criminally prosecuted for this type of practice. It sickens me to know that they are getting away with this. Every time I hear one of their advertisements on the radio telling people how caring and advanced the Mayo Clinic is, it absolutely makes me sick to my stomach. These people have no shame, they have no scruples - they operate with impunity by putting out false hope and using clever marketing.
And its advertising on its website the Mayo Clinic states that they send a survey out to every patient. They try to act as if they are concerned about the care that patients receive. This is complete BS - I never received a survey to fill out. I'm sure they don't want my survey in their files.
I am sympathetic to all of those who have been hurt and injured by the Mayo Clinic and there are many. It is almost impossible to sue the Mayo Clinic. It requires enormous resources and influence and until they are exposed for what they do and how they hurt people this will continue to go on. As for me, I will continue to expose the Mayo Clinic every chance I get. I fear this may be the future standard of healthcare.
PHOENIX, ARIZONA -- Wow, what a terrible experience. I saw Dr. Michael ** at the Mayo Clinic in Phoenix, Arizona. He looks like he's 80 years old. I'm not kidding. I would think with a lot of experience. He sent me downstairs for lots of blood tests. He got the results and a week later had me back for lots more blood tests. So, I finally get the phone call from his assistant who doesn't leave her name stating, “Stop taking the **”. There's only one problem with that. I am 60 years old and have never taken **. So I call them and leave a message. They return the call again without name and say they made a mistake, “Stop taking **”. I've never taken ** either. I never go back or call back again.
Then, I get the bills. This goes on for over a year. I don't owe anything but I better pay it by tomorrow or else! In July, I get on a three way call with my insurance company and Mayo Clinic. Mayo Clinic finally says "All set, you're all paid up, no more bills". Then, three months later I get another bill. What a bunch of clowns? I could have gotten treated badly like this anywhere. Why go to the Mayo clinic?
ROCHESTER, MINNESOTA -- Our father went to the Mayo Clinic in Rochester, MN for surgery and died in recovery. Now they are demanding we pay his outstanding medical bill or they'll send it to collections when it was their fault he contracted an infection that you can ONLY get in a hospital, and they did absolutely nothing to try to save his life! They are uncaring, uncompassionate, and a bunch of ill-trained malpractice idiots. We even threatened legal action and they just brushed it off like it's no big deal, I want everyone to be aware of the risk you take in leaving your loved ones in their so called "care"!
JACKSONVILLE, FLORIDA -- Not impressed at all. I do acknowledge the system there seems organized. There is minimal waiting time and most of the staff is friendly. Other than that, it's just a regular health care provider. I didn't see the "going the extra mile" at all. They do run a lot of tests, but even with some random results that could mean something potentially dangerous, they just left it there stating that "blood work has fine and not many classic symptoms present".
One of my blood exams was abnormal (could be the cause of a very serious condition) and many of my imaging tests showed abnormalities too that at end could not be explained. And here I stand, left with all these bills, no definitive answer, and more worried than when I first walked in. Disappointing.
ROCHESTER, MINNESOTA, MINNESOTA -- I suffer with a collagen/connective tissue disease called Ehlers Danlos Syndrome. It has left me with a blood clot in my brain and many other debilitating symptoms. I went to the Mayo expecting quality medical care. I was told I was scheduled with the top neurologist. What a joke! First of all he was as arrogant as anyone gets and knew nothing about my disease.
Instead of referring me to someone else, he dismissed me altogether. I also suggested that I have Chiari Malformation and he insisted I didn't. I thought, how could he know? The proper MRI was never done! I am a 22 Year RN and know what tests were needed.
As it turns out I do have Chiari and need brain surgery. The same visit I saw an internal med doctor. He suggested I was depressed. Both Drs looked to be long overdue for retirement. My suggestion is to research your illness. There are great Drs all over this country. I care for people with MS and none of them were happy with Mayo. The Mayo may have been a good place when the Brothers were alive, but no more. It's a complete waste of time and money. If they can't treat you they try and convince you that it's depression or your illness doesn't exist.
WASECA, MINNESOTA -- Going to Mayo Clinic in Waseca was once again a HUGE JOKE! My 11 year old daughter suffers from asthma and weak immune system and after her being sick for 3 weeks and following all of the recommended procedures we called and they said to bring her in because she has been running a high fever and has been up several nights not being able to breathe!
Of course Shari ** REFUSED to listen to our concerns and told us that we were lying about how she has been feeling after only listening to her lungs and looking in her throat - after when we said she had asthma and asked if she was going to even listen to our concerns she was extremely rude and said "Oh yeah I heard her wheezing" and said, “Go home and rest.” From now on we will ONLY go to Mankato Pediatrics where they know how to listen and actually take care of their patients!!!
ROCHESTER, MINNESOTA -- I know there are probably a lot of people struggling with infertility who are not comfortable sharing that information. I am sharing this story as a way to hopefully keep others from having the horrible experience we did with Mayo Clinic Reproductive Endocrinology...
In November 2016 I had called reproductive endocrinology and was told we could transfer outside donated embryos and use our Mayo insurance. After buying the embryos we called to make an appointment and were told we could not bring outside embryos in and were given incorrect information originally. Not having our Mayo insurance cover this procedure would have costed us thousands of dollars that could have been saved.
I asked them to investigate where this came from and they assured me they would. Thus began nearly a year process of them not calling us back. Finally figured out the person I was contacting was the one the incorrect information came from. She was undoubtedly trying to cover herself.
At one point, six months passed without a call back, when I finally wrote to patient experience. We requested they provide us proof they had educated their staff that outside embryos are not accepted so this would not happen to anyone else. Mayo Clinic Reproductive Endocrinology refused. This is the worst care I have ever received and I would not recommend them to anyone.
I'm aware I have friends who work for Mayo Clinic in some form or another or who have had a positive experience with Mayo Clinic Reproductive Endocrinology. Infertility, however, is so heartbreaking to begin with I just hope I can stop anyone else from having the same experience we did. I'm happy to share more details with anyone who wants them.
ROCHESTER, MINNESOTA -- I was diagnosed with terminal cancer almost 3 years ago. I came to Mayo Clinic to see if there were treatments or clinicals that could help me. There was not. Next came the bill for several thousand dollars. I am not a wealthy person and could not immediately pay it. I have faithfully sent payments every month, have never missed a month. I have received notices from the Mayo Clinic that my bill is not paid yet. Today I received a notice that my bill has been sent to a collection agency. My bill that was originally several thousand had been whittled down to $1,025 and I had still planned on paying it off.