ROCHESTER, MINNESOTA -- My efforts to go to Mayo Clinic in MN, the supposed "world class" facility famous for diagnosing patients with hard to diagnose medical conditions, was met with the most egocentric, rude, threatening individuals I have ever encountered at any hospital. I was set up to go to the clinic for four days of doctors appointments, as set up by the internist in the department that reviews cases of people coming in from out of town and written by a nurse who takes your summary over the phone.
The "Internal Medicine Doctor" decides what doctors you should see to help diagnose you. When I questioned why I was not given the appt in the one department that was the real possible issue and the reason I called the Mayo Clinic in the first place, I was met with a bizarre combination of combative defensive posturing by nasty staff members. Instead of wanting to correct the errors in the written report taken by the nurse that would help get me to a final diagnosis, they cancelled my appts and said "Go elsewhere lady."
I was so stunned by the overall demeanor of every single person I spoke with in that department. I asked myself if they were covering up their errors and worried I had determined that they missed the critical part of my case, and or just were a bunch of the most miserable people I have ever had to deal with. It was the opposite of what a medical facility should be, especially one that prides itself on its ability to truly help patients where other hospitals have failed. They represented everything that is bad and wrong about medical care. The ego got in the way of listening to and helping or possibly helping a patient.
Every single attempt to correct what was likely an oversight, and to try to get the one appt, with a specialist in the one department I was told, by my doctor at home, was what I needed, was met with refusal and lack of desire to admit that maybe they messed up or that maybe they should correct the agenda given to me. It was a disturbing "take it or leave it" attitude. GO ELSEWHERE. These are not people that really care about getting patients well and when the first key to that journey is listening and reviewing important facts about a case is met with resistance and denial you know you are in big trouble as the patient.
So beware, if you go, the patient is always wrong and never right. The patient must never ask a question, or question the path taken or decisions made by the staff or the doctors there. If you do you will be kicked out of the place promptly, appointments canceled that you worked hard to secure, and red flagged as a problem and treated with the same respect as a homeless drug addict.
Sadly, Mayo's reputation is undeserving. If you really review the backgrounds of some of the doctors at this clinic you will come to realize that some, not all, do not have that impressive of a background. And when you do review those backgrounds and question the reasoning behind being given the appointments with those specific individuals, versus others, you better be ready for one nasty reaction by the person on the other end of the phone.
Mayo Clinic employees should be ashamed of themselves. The stress of dealing with chronic health issues that are a mystery is bad enough, but having to deal with a team of employees who treat you like crap before you have even stepped foot on the campus in MN is a seriously disturbing problem for Mayo. At least as far as the internal medicine program is concerned GO TO Cleveland Clinic. The people are warm, welcoming and actually want to take the time to understand your problem before you get there so that your time and money spent is worthwhile and so that it is indeed a productive trip that generates real results. A night and day difference.
ROCHESTER, MINNESOTA -- My 13 yr old son recently having depression, failing grades, serious emotional issues started receiving "Treatment" through an Emerald Plan Team of Social workers, Residents and Psychiatrists. After a couple weeks of Treatment became suicidal and was admitted to Generose Psychiatry Treatment under his and my decision. I visited him while he was locked up for his own protection several times. The first time he told me that he could still hurt himself even though it was supposed to be safe in there. He showed me a metal object in his room which I immediately told his staff.
The staff worker replied to me that there were many of them around and never did try and take the object from my son. After less than a week, the staff called me on the phone at home and said "Do you have any guns at home, and are they locked up or just laying around?" We are releasing your son today. I begged them not to release him. My son had been calling me 3 consecutive days prior and asked that he please not be released due to him being emotionally unstable. I called several times to his Blue Team Staff and asked them not to release him. I was told it didn't matter what his Dad had said, just what my 13yr old had said.
Also, that there was a shortage of rooms/beds for other patients who were waiting to get in. They released my son no matter what I had told them and immediately he went back into Transitions with his therapist and group. The first time I seen him after dismissal and picked him up from transitions program therapy it had been a couple days since he had been out, back to school, back at mom's house. I noticed immediately that he had a large scratch on his face. I asked him if he had been cutting himself which he said he had. I confiscated this item below from his pocket coming right out of transitions therapy.
He told me that I was the first person who noticed he had cut himself over several weeks of treatment. His mom didn't even know as he lives with her mostly. (He has been seriously abused emotionally and some physically so he cuts himself to try and feel emotions.) He hates his mom, his life, and wants to live with his Dad. When he has altercations, gets depressed, left alone, he hurts himself at his mom's house. He even came close to suicide recently. I am just livid as I had told therapists, Psychiatry team about his cutting, asked to remove the metal object from his safe room.
Found out he also had cut for a long time and when I took him home he showed me approximately 30 cuts over his arms, legs, thigh, and face. I just do not understand how these Professionals can receive their paycheck without feeling guilt for not helping my son at all. I spoke my mind to all believe me, not a word back, no apologies, nothing. Worst of all, my son continues to have issues and the treatment plan has now crumbled since they were all duped, did not catch on, listen to his dad. If I were their boss they would all be fired instantly.
JACKSONVILLE, FLORIDA -- Firstly, I read about their cutting edge technology. So I having a heart issue, decided to make an appointment. No response! Next step to check in ER. Everything went well. They ask all the right questions and performed preliminary test. The visit turned out to be fruitless. As I said I have a severe heart issue but I never saw a cardiologist. They let me out quickly. I am having chest pounding and the service was so poor. I couldn't believe it. I saw one doctor for a few minutes on a Monday morning.
All this cutting edge hype is nothing but that. Hype! I would not suggest anyone to go there, especially if you have a chronic issue. No good help whatsoever. They are a total disappointment. Don't go there. I might just save a life by writing this.
JACKSONVILLE, FLORIDA -- Went to the Mayo for unknown fevers, aching, fatigue expecting a "team approach", expecting physicians who listened, expecting a partnership to help me figure out what is wrong with me. That did not happen AT ALL. Once in a while I got a doctor who really cared, the rest were no different than my local physicians. After seriously draining my insurance on tens of thousands of dollars, they have dismissed me as a patient and told me they simply can't help me and have not given me a diagnosis. WHAT??
I couldn't believe it. If they accepted me as a patient they should stay with me and try to figure out what is wrong. They should be ashamed of the way they tossed me aside because I wasn't "easily diagnosed". DO NOT SPEND YOUR MONEY HERE!
ROCHESTER, MINNESOTA -- Do not fall victim too! I was referred in May for an infection only 'they' are able to treat. But I got the call today, that they would not be able to, since it has been consistent for four years, assuming I am delusional... Huh?! They said I need to get treatment closer to home. That is ridiculous since the referring doctor says no doctor in or around my area can treat because they are not educated enough. Ummm so now what??
Also, the Mayo doctors only read some of the doctors' notes and not one lab result which there are four lab results all saying the same!! I have had six specialist all tell me to go to the Mayo because they will treat me. Yeah right. What a ** joke!! #willsufferon!! Thanks Mayo Mafia!
MINNESOTA -- I went to Mayo in MN about 2 years ago for my daily chronic migraines. The Doctor I saw was not very good to me. He treated me like I wasn't worth his time. I'm on the states insurance, and my primary Doctor pulled some strings to get me there. And the Doctor that I saw did a MRI and said everything was normal. And then did spinal tap and said my presser was 63 and said that was normal. I took his word on it, at the time, but later found out that the lowest it should be is 70, which I looked up on the Mayo website. Then went on to tell me that I would have to live with this the rest of my life.
JACKSONVILLE, FLORIDA -- Treated for heart attack in 2010, brought in with ambulance without insurance. First told I would get open heart bypass, then two days later told I would simply get a stent and need to return as an outpatient for bypass, but an angel from the cardio group got the bypass back on. They did the bypass. It saved my life, but a nurse overdosed me with insulin and the VP of Mayo told me so.
12 hours later I was being treated like a criminal and being threatened by every doctor and janitor till I got out of there. They provided security for me doubling as a spy for them. I praise the doctor that performed the bypass and the stents. My advise is to have a friend or family member stay with you at all times.
SCOTTSDALE, ARIZONA -- You cannot get an appointment with a doctor unless you wait for 2 to 3 months. You are forced to see nurse practitioners. One doesn't even know the latest on PPI affect on the heart. Since they lost 60% of their physicians in early 2015 they have gone to a 4 to 1 practitioner to doctor ratio. Good bye to quality healthcare..
JACKSONVILLE, FLORIDA -- I was misdiagnosed and abandoned at Mayo Clinic Jacksonville, Florida after three (3) plus years as a patient there. I was denied treatment and follow-up care for two types of cancer after I was finally, correctly diagnosed. I have a family. I am a mother of four. I am a wife. I believe in God and Heaven and I have a lot to live for. I love my life and I want to live to see my youngest children grow up.
My ordeal with illness and Mayo Clinic has been crushing but has not completely crushed me. I feel like a tiny ant under the heel of Goliath. I feel that my life had no value to some at Mayo Clinic and I was thrown away like a piece of garbage. But, I am blessed to have found the best of medical care and the utmost compassion from the doctors and staff at Memorial Sloan Kettering Cancer Center in New York, NY which restored my faith that there are medical professionals who have maintained their humanity and have good hearts.
I want to warn others about Mayo Jacksonville's administration's pervasive culture of defensiveness, lack of compassion for me and their blatant, harassing collections protocol and denial of care to me. I know other patients that had very similar experiences but they need to speak up for themselves. There is an obvious, prevalent, pompous attitude with the administration and the financial services department.
The physicians, whose attempts to provide patient care and treatment, are ruled with an iron fist by Mayo's administration and financial services department. My oncologist, a sarcoma specialist, was forced to abandon me by the administration at Mayo Clinic.
This is my story: I was diagnosed with GIST Sarcoma (gastrointestinal stromal tumor), a rare, orphan cancer that does not respond to traditional chemotherapy nor radiation. I also was diagnosed with the common form of Papillary Thyroid Carcinoma but with the rare, aggressive Columnar Cell Variant.
I was repeatedly dismissed and denied tests & care for the thyroid lumps that I asked Mayo to ultrasound and provide an endocrinologist for. I had an ulcerated, bleeding, cancerous tumor that hemorrhaged for five (5) years and nearly killed me a few times (My hemoglobin went up the day after my GIST tumor was removed & has remained normal & the highest it's ever been).
I was under the very nose of a Mayo hematologist and oncologist for more than 3 years and had two undiagnosed serious cancers and he misdiagnosed me. Then he abandoned me and did not see me anymore. I would be seen by a different doctor or a Physician's Asst. each time I went to Mayo. I never knew who I would see and was prescribed IV iron infusions in chemotherapy and they did not really know why I could not keep my blood counts up or really why they were administering infusions or why I was bleeding internally.
I was hospitalized in Mayo with active GI bleeding proven by tests in the ER and in hospital and Mayo missed my bleeding tumor every time. The region of bleeding could be seen on a test but Mayo's hospital doctors missed it. I went through countless endoscopies, colonoscopies, camera pill studies, nuclear medicine scans, angiogram with catheter, and many other procedures when a simple CT Scan revealed the tumor in my small intestine. It was right there the whole time. This entire experience was extremely stressful, frightening, humiliating and racked up needless debt.
Note I was also hospitalized with hemorrhages in another local hospital several times over two years prior to being a patient at Mayo Clinic. I had a CT Scan there in 2007 and I may have a CT Scan at Mayo in 2009. I had countless types of scans at Mayo. I was in absolute fear that I would one day die from hemorrhaging. I was in fact advised by my gastroenterologist at Mayo Clinic that “we have to find out where you are bleeding from. You might not make it the next time you hemorrhage. We could lose you”. I had in fact almost died in another hospital prior to being a patient at Mayo Clinic from two separate massive hemorrhages.
NOTE: this Mayo gastroenterologist is an excellent, caring, good doctor. He was my only true advocate at Mayo Clinic and he wanted to help me. He stated “I don't think the way you are being treated here is right; I am going to discuss your case with the board at our next meeting”. This would not be the first time a Mayo physician with good values and a good heart would sit in front of me and apologize to me. After I was diagnosed with GIST Sarcoma, I was assigned to a new sarcoma specialist.
He stated he was “sorry for what I had been through and he would be sure I had better care, that he wished he had met me three years prior as he would have suspected and looked for GIST Sarcoma, that I had every symptom of GIST Sarcoma”. If this isn't telling, I don't know what is. Damage control - terminating patients' care & treatment: MY CARE AT MAYO CLINIC JACKSONVILLE, FL WAS COMPLETELY TERMINATED after I was diagnosed with the two cancers.
I believe Mayo Clinic's administration went into damage control and got rid of me to avoid potential legal repercussions. They know mistakes were made and they worked to get rid of me. My own oncologist, a sarcoma specialist, who was newly assigned to me in my last months at Mayo Clinic phoned me himself to “warn me that he had been approached by the administration that they were going to terminate my care due to a lack of mutual trust and my bill”.
He stated “I want to be your doctor. I think it is wrong what they are doing. There is not a sarcoma specialist in this region but I will help monitor your CT scans for you if you like and I know a couple of oncologist in the area that I will call and talk with for you. I will ask the administration to reconsider.”
I never heard from my doctor again. I was heartbroken, terrified and crushed that a healthcare organization would treat a patient like this. I had expected that Mayo Clinic would own their mistakes and ensure that I received better care which my new sarcoma doctor wanted to do. The ethical course of action for Mayo Clinic's administration to have taken for me would have been to APOLOGIZE in addition to financial services working with me to reduce the bill rather than kick me to the curb knowing fully well I had an UNTREATED cancer of the thyroid that would require surgery and radiation therapy and possible other therapies afterward.
I am still undergoing treatment for the thyroid cancer for which I was denied by Mayo. SPEAK UP FOR COMPASSIONATE CARE IF YOU ARE A MAYO PATIENT and experienced similar circumstances know that you have rights as a patient. SPEAK UP! Do not allow Mayo Clinic to bully you. You deserve respect, COMPASSION and proper medical diagnosis and care. If you cannot pay your bill, you have the right to apply for financial assistance. These are things Mayo Clinic did not provide to me.
MAYO CLINIC's PATIENT LIAISONS I phoned patient liaisons several times while a patient at Mayo Jacksonville. I expressed my fears and concerns that I was not getting better. I shared my humiliating experience with a very rude, abrasive, pompous doctor in their gynecology department who misdiagnosed me and recommended a needless procedure and/or surgery.
I also complained about the harassment I experienced with financial services. I also asked to speak with the President William ** at Mayo Jacksonville who ignored me. Patient Liaisons did nothing to help me and did not advocate for me in any way that I am aware of. I believe that the Patient Liaisons served only to accumulate information and complaints from me which launched Mayo into defense mode and damage control then terminated my care.
ROCHESTER, MINNESOTA -- I live near Mayo Rochester.. My family has gone there for decades. We have decided any type of VOODOO is better than Mayo clinic. Here's part of the story. I had a heart attack 2 1/2 years ago.. We went to the emergency room at St. Mary's. During my 4 days there I got little or no sleep.. (later hospitalization by other family members were the same!). The attendants stood outside my room discussing Basketball Final 4 half the night. I closed my door. They duct taped it open. Then continued their sports talk.
My cardiologist said "sleep is overrated" and "You can sleep when you get home." Nice Fella! Food was restricted. The medications prescribed were a nightmare in themselves. I did not tolerate 2 of the Golden Four medications. PROCOR gave me horrible flu symptoms. Lopressor later caused me to get frostbite since it reduces blood flow to hands and feet. The arrogant doc refused to moderate the meds. I later fired him and went to a less arrogant clinic.
My wife required surgery to correct a colon problem. She reacts very badly to morphine and related pain killers. We met with 2 docs on the day of the surgery AND she was wearing the orange drug reaction band. They gave her a Morphine family drug anyway.. She was in ICU for 2 days.They gave no reason for it.. Our family doc found out why a year later.
Managed care.. I went to Mother Mayo for 5 years for severe back pain (2 canes to walk were needed). They gave me an epidural 3-4 times a year for the pain. The pain got worse. They refused any other treatment. I went to a great Doc in Edina MN, had surgery and was almost pain free 4 months later. I wasted 5 years of my life with Mayo. Inactivity contributed to the heart attack. In conclusion... Some departments at Mayo are Good.. Others should be avoided.