GREENSBORO, NORTH CAROLINA -- For people who have never had to survive on the Benefits paid by SSA and/or attempted to make sense of what the agency says or does, I hope you never have to. Each time you talk to them you get different answers to any correspondence whether it is in person, on the phone-locally or nationally. For me it was a shock to even be advised that I had "kidney failure" during a routine physical exam. Going on dialysis was no joke.
I worked for approximately 2 yrs under some very trying circumstance. Finally, I had to apply for disability because I could no longer work full-time. I did not want my home to go into "foreclosure". It was my hope to have a transplant before all of my savings was used up. It did not happen. SSA sent a publication saying that you could "work while disabled".
In order to supplement the $900 a month payment they were sending me, I went back to work part-time in order to have a place to live, be able to pay for meds, doctor co-pays and utilities. My mortgage w/taxes and insurance is approx. $800 per month. One year of kidney failure, 6 yrs on dialysis and finally, 3 yrs for transplantation & recovery.
I am still in my home but SSA says my overpayment is $34,000. I let them know that I was working and I was using my own SS#. If you have not been there, don't judge "mad lady". As for me, I am praying for her, others like us and for SSA.