Centers for Decease Informative - Red Alert to Medical Neglect and Denial of Treatment for a One Year Old Infant Diagnosed with Hepatitis!!
NEWARK, NEW JERSEY -- Ms. Monica P
RE: Request for medical treatment for my infant son. My son was born born a normal child with no illness.
My name is Ms. Monica P and I am requesting your urgent assistance in obtaining medical treatment for my son. My son received the Rotavirus vaccine and immediately had a side effect which was vomiting. In the weeks that followed he began having severe vomiting, sever diarrhea & fevers 3 -4 times per day and night. Doctor’s believed it to be a virus, but the virus never went away.
My son had fever that spiked to 104.9 and he had a seizure, we immediately went to Jersey City Medical Center June 30, 2008, by Ambulance. After nurse evaluated, my son she sent us to wait in waiting room, we were made to wait in emergency room for 5 hours without treatment. I then went to home and following morning Bayonne Hospital treated my son with antibiotics & motrin for the fever, he was diagnosed with having febrile fevers. Hospitals are falsifying reports that actual treatment for a head injury. This is false we were never seen by a doctor and the nature of my son's seizures is not from any head injury.
My son continued on with his unexplained illness and he had another seizure and went to St. Peter’s hospital and according to them they did not find any explanation for the illness. I had My son seen by every specialist to find answers and no one could tell me what was wrong with my baby. My son continues to suffer without answers. After the overdose, all of My son's physician’s called the pharmacy and cancelled all the prescriptions and then refused to give any authorizations for future medication. I began to pay for medication out of pocket until the authorizations came through. St. Joseph’s social worker got in touch with each physician & pharmacy and required them to put the authorizations through so my son would not go without medication.
I researched and found that my son was diagnosed with complex compound seizures, Hepatitis, Anemia, Celiac disease, Digestive disease and a bad liver due to elevated liver enzymes in May 2009. No one told me anything and never discussed with me any treatment plan for any of the illnesses listed above. My son developed sever allergies as a result of the Keppra overdose. I am writing to request your urgent attention in providing my son so he can get the necessary: Globulin shots, Hepatitis injection, Seizure medication and specialized testing in order to prescribe the correct medication that will treat my son’s condition with medication that he will not be allergic to.
As a result of the overdose, now has Celiac disease he is allergic to: wheat, egg whites, codfish, milk, corn, peanut, soybean, cat & dog hair, American cock roach, house dust, D farina Mite. Prior to the overdose, Joshua had no allergies. The hospitals never told about the food allergies or even informed me of any diagnosis. I found out the truth by researching for myself, after the issue of feeding my son was addressed they provided him with food items he was allergic to there was no special adjustment to order organic or gluten free diet.
My son is now 22 months old and he has not received any treatment for any of these chronic conditions, unexplained fevers 3 to 4 fevers per day, sever vomiting 5 to seven time per day and night, diarrhea & constipation, febrile seizures which turned to regular seizures and were later diagnose as Absent seizures and then Complex Compound Seizures. My son now also has developmental delays such as behavioral, speech – he was able to speak prior to over dose now I barely even get him to say mama. In addition, I believe my son has sensory issues as well because now I have to grind most of his food or he will throw up – he use to chew his food but now he has a great deal of difficulty.
I also believe my son has a vision problem because he was standing 3 feet away and ran toward me to give me a hug and he ran past me and into my refrigerator, at times he has problems with coordination, some days he has trouble standing on the right leg – goes to take a step and falls. My biggest concern is the reaction to the keppra medication, which he received throughout his treatment. After May 2009 overdose, my son had an allergic reaction which caused rashes from head to toe, rapid eye movement, hallucinations, night terrors, unexplained over the top fear and the list goes on... My son has since advanced in the amount of seizers per day which is now 5-7 give or take a day, vomiting through nose & mouth. My son still has no seizure medication to this day. I was told by the doctor’s that no medication is a treatment since he had so many reactions to the keppra and they tried to put him on trileptal and continued to have each and every reaction.
In addition, my son is listed as special needs and these conditions which should be regulated, studied and closely monitored by physicians; Centers for Disease Control and Prevention recommend repeat pediatric blood levels. The insurance is not covering any more testing or treatment, this is unacceptable and I will not throw in the towel or give up on my son. I made many attempts to gain treatment for my son with no success – we are turned away every time. Where are the special needs advocates, services for disabled families with disabled children? More importantly, where is the help and health professionals that work in the Children’s specialized hospitals that are paid to care for our children or for MY CHILD?
I requested assistance from social security, department of health and human services and the hospitals. I have even gone so far as to report false information that is preventing any treatment or assistance for therapy, programs to assist my infant son who has special needs. The hospitals are claiming that my son is this way due to a disease I had while pregnant & head injury he sustained on June 30, 2009 - which is false.
If my son had a head injury and my son’s father & I had Hepatitis or some another disease which caused his illness, these are all lies. Granted, if any of these accusations were true then where is the treatment and care for my son. My son’s father and I do not have any hepatitis or any disease that would cause the illness in my child. My son and I have been black listed and all medical assistance is being denied to him. I have gone to different medical facilities because my home town does not have pediatric neurology in my Bayonne or neighboring city, so this is why I have to venture out to different facilities.
The refusal to treat or even test my son, denying him classification as disabled, denying government programs, down grading his class A health insurance to class C and stipulating No More ex-rays, MRI and necessary blood testing is to be done by LabCorp (which is affiliated with Medical Center and I will never receive the true results can be altered.)I never had this stipulation with my health insurance before. The end result will be, my son never receiving proper treatment leaving him to languish with his weaken immune system. My son has not even received all of his vaccines leaving him open to more issues with him still to this date never receiving the globulin shots, hepatitis vaccine or any preventative treatment for his illness. The question still remains will this laps in treatment further endanger my child from the swine flu, when the state is requiring children with weaken immune systems & chronic illness to be vaccinated. Another point of interest is will it be safe to administer the vaccine or any other medication to my child without proper screening to ensure he will not be allergic to it. The answers & true final diagnosis will never be achieved without the necessary testing.
I have even gone so far as to pay out of pocket for the sensory therapy & medication. I could not continue the therapy because it became too expensive. Due to the fact that, I am a single mother who is also disabled and I will not given up on trying other programs that will assist in providing continued therapy & treatment. My son's future is hanging in the balance unless he receives the proper assistance regarding this issue and planned action is implemented to prevent it from happening to someone else.
The false accusations cause the health care providers to see me as a person that injured my son and the doctors and healthcare facilities treat me as an outlaw. Note; if these accusations were true where is the DYFS investigation and why do I still have my son? My son is the key that will unlock the truth and prove the healthcare providers deliberately constructed the false accusations to mask to truth behind the cover-up of the overdose make every facility not want to touch my son and he would ultimately be left to ruin. The Keppra overdose which occurred in May 2009 at University of Medical & Dentistry of New Jersey Hospital in Newark, NJ., the inhuman treatment & unsanitary conditions and refusing to feed my son and I stayed in while staying in the St. Joseph’s Hospital located in Patterson, NJ. I stayed and endured the harsh treatment and kept silent because I was desperate for answers and treatment for my son.
The state came in and investigated and the St. Joseph’s hospital was cited for the issue and latter produced doctored hospital reports along with University of Medical & Dentistry of New Jersey Hospital where the overdose took place. As the result of the over dose my son, now has Celiac disease and sever allergies, Development delays etc. I obtained copies of medical reports from select physicians who treated my son and when the other hospitals found out that I had knowledge of the cover-up that is when they began reporting my childs’s case to human services, CDC ect… The proof for everything I am stating is in the medical treatment & blood testing.
my child deserves to have a fair chance at life and good health. Treatment is available here in the United States, every year the US goes to third word countries and give the immunizations, preventative medicine and treatment to prevent all types of childhood illnesses. My son lives right here in the United States and he is being denied and being left behind to ruin, preventable additional health problems or God forbid even death. I am a mother and it is an experience to watch your child become unresponsive, with his eyes rolling back in his head and won’t wake up immediately after medication is administered. I hope you never have to experience that, like I did when I watched in horror and began screaming and the nurse that administered the Keppra medication at 5 ml’s when he was supposed to receive 0.5 ml’s.
I confronted the nurse and she was belligerent, unsympathetic & uncaring about what she had just done to my son. I began to cry and asked for a doctor and demand for someone to help me! Other patients and parents in the ER at UMDNJ came to see what happen and even some actually left and did not continue waiting for treatment. I requested, an investigation at UMDNJ and instead they sent social services to my son’s room with false accusations, I demanded to be transferred to another facility and they refused. I was informed there was no one to accept my son at Newark Beth Israel Hospital so I would have to go to the ER. I went to the ER and UMDNJ refused to forward the hospital records over and my son was never treated for the Hepatitis from the overdose to this day.
my son & I are relying on you to call forward my silent witness which is the Video EEG & Security cameras which witnessed every horrible detail of what I am stating to you. We are at your mercy for justice and the compassion of your heart to seek out the truth and save my baby’s future.
Professional Hospitals, Center for Disease Control, Department of Health & Senior Services, and the Government would not permit a 1 yr old child to continue suffering needlessly without medication for a condition that is treatable. My son is repeatedly turned away from treatment and denied valuable medication that can prevent his condition from worsening. I have reached out to every organization and facility that will hear my cries for urgent help for my son and now I am reaching out to you. I have a long list of doctor’s who refuse to treat my son. No one has gotten back to me or replied. I refuse to give up on my baby like so may others have just because they don’t want to get involved. Put yourself in my shoes, and ask yourself how far would you go to save your innocent child.
I requested copies of medical reports, copies of what is being reported to Dept of Human Services, hospitals or even my child's complete diagnosis. I have been denied the right to be informed about my son’s condition or receive copy of any records they have on my son. I attempted to contact the doctors and request continued treatment for my son my son and my attempts have been ignored. The Health Dept in my town referred me to Horizon Health Center they treatment for hepatitis yet they also turned us away & referred back to UMDNJ or us to a Hospital in New Brunswick. My child is getting the run around, I am desperate. I made this request before and no one would even review the videos which prove my statements entirely.
In addition, none of the ER patients that were in awaiting treatment were even interviewed for May 2009; they can verify my statements are entirely true. However, Human services did conduct investigations reviewing the issue without reviewing the videos and they read the falsified records could not be proven. Department of Health & Senior Services investigated complaint# NJ00032207 and St. Joseph’s was cited for the area of deficient area. The details regarding what St. Peter’s University Hospital reported to Dep. Of Human Services is listed for Joshua Pinckney ID# 412979 born: 1/30/08, I was never able to even obtain a copy of the report from either party.
The hospitals are claiming injuries were inflicted to my son by my own hands, this is untrue and is all being said to cover up negligence on there part. Please conduct a fact finding investigation to gain the proof, proper care, and justified action that is necessary to rectify the intentional violation of the human rights of my son and me. My son has been suffering chronic illness for a long time which has gone covered up and untreated. Please contact me so that I may be involved with the fact finding proceedings. I deeply saddened & desperate to obtain the urgent care needed for my son and clear my good name.
The Hepatitis A from certain drugs which cause this form of Anemia (caused by the overdose) which can be helped with the globulin shot as well as additional treatment. I believe this is Hypo Gamma Globulin Anemia and my son falls under the CVI category. There is treatment please help me save my son… I am desperate; I have gone every where, called everywhere seeking assistance and received no treatment for my son.
Please contact me as soon as possible regarding this issue and I will provide the necessary copies of medical records that support my statements, as well as video of the pre and post treatment physical condition of my son. Pictures of the facility, video of my son’s condition worsening. Most importantly, test my son’s blood conduct your own test and see for yourself – give him treatment.
Ms. Monica P